Peer Support to form a stronger, more connected cystic fibrosis community
The Cystic Fibrosis Community Advisory Committee provides a peer support program. Peer support provides a safe environment to address non-medical questions and concerns, to connect cystic fibrosis parents, partners of people living with cystic fibrosis and importantly, our teenagers and adults living with cystic fibrosis to form a stronger and more connected cystic fibrosis community.
Research and lived experience tell us that parents with children diagnosed with a chronic illness have increased anxiety, depression and insecurity which leads to feelings of isolation. After entering a mentoring relationship/program parents may feel less anxious and less isolated. Parents feel better equipped to deal with a chronic illness and more confident to navigate the disease space when they are supported. Studies also show parents feel positive and understood.