Resources

Queensland Children’s Hospital – Parent Handouts

Resources created by the Occupational Therapy department at Queensland Children’s Hospital

CF Tips for Parents Handout – Daily routines and treatment

CF Tips for Parents Handout – Education

CF Tips for Parents Handout – Managing procedures and procedural anxiety

CF Tips for Parents Handout – Introducing new treatments and equipment

CF Tips for Parents Handout – Managing mealtimes

CF Tips for Parents Handout – Starting school or daycare

CF Tips for Parents Handout – Tablet Taking

My CF Jobs Timetable

Cystic Fibrosis Questions

Carers

Carers play a crucial role in our community—often without realising. For many people, looking after a loved one is ‘just what you do’. They are mums and dads, sons and daughters, brothers, sisters, grandparents, spouses, friends and neighbours.

The Carers (Recognition) Act 2008 defines a carer as:

“An individual who provides, in a non-contractual and unpaid capacity, ongoing care or assistance to another person who, because of disability, frailty, chronic illness or pain, requires assistance with everyday tasks.”

If you are the parent or partner of a person living with cystic fibrosis and you support them with management of their chronic illness and clinical adherence, then you may be eligible for carer allowance.

The Queensland Government has a list of support services for all carers, with some additional services specific to groups such as parents and grandparents, older and younger carers, and carers from culturally and linguistically diverse (CALD) backgrounds, a list of support service providers can be found here.

If you would like to speak confidentially to another cystic fibrosis parent or partner to share your lived experiences, please contact services to help you connect with the right person.