Stories
Want to reach out? Our CEO, Petrina Fraccaro can be contacted on CEO@cfqld.org.au or (07) 3359 8000 and 0412 134 820.
Travelling with cystic fibrosis, Jess tells us her story
Hello everyone, my name is Jess, and I am a 36-year-old living with cystic fibrosis. I’m actually writing this from my 34th country, Cambodia, and wanted to tell you all a little bit about myself and my travels with cystic fibrosis. Firstly, I consider myself very...
Ashton’s Trikafta Journey
I'll never forget the day I started Trikafta, it was 2020 and it was deemed I was unwell enough to apply for compassionate access to Trikafta, the new triple therapy modulator. I was unlucky to be that unwell but lucky to be granted access to Trikafta because it has...
Medicare and Mental Health Plans
During the pandemic, Government Medicare subsidised psychology sessions were increased to 20. And from 1 January this year, they have been cut back to ten. We know that for many people, 20 sessions were far less than needed. The number is in fact arbitrary and may not...
The role of Health Consumer Representatives and why we need them
Cystic Fibrosis Queensland encourages all members to be cystic fibrosis advocates, and our team is available to help you to develop the skills and agency to add your voice to supporting our cause. Health consumers, people like you, have been involved in planning and...
Trusted Care Cares for our Carers
Trusted Care Cares for our Carers - Proudly supporting the parents, partners and friends of people living with cystic fibrosis. This is an open psychosocial mental health information and awareness event targeting people who are personal carers for those living with...
Take the Plunge for Cystic Fibrosis
Cystic fibrosis affects the airways, lungs, endocrine system by causing an abnormal build-up of thick and sticky mucus. Treatment requires intensive daily physiotherapy to clear the lungs and airways, countless medications, and frequent hospitalisations. In Australia...
Cystic Fibrosis Queensland celebrates 62 years of providing support, services, and hope
Cystic Fibrosis Queensland was the founding member of the existing Australian Federation. Sixty-two years ago, a group of like-minded parents met in a church hall in Annerley to discuss how they could find a cure for the life-limiting disease suffered by their...
Navigating your way with Government Funding
Will my child maintain access to a Health Care Card for life? What about other Government funded programs? Cystic Fibrosis Queensland and Trusted Care are often asked these questions and while no two cases are the same, the following guideline has been created to...
65 Roses for Cystic Fibrosis Month of May
May is the national Cystic Fibrosis Federation of Australia month whereby we come together to support our community by raising funds and awareness themed around the number 65. Why the number 65? “Sixty-five roses” is how children around the world are taught to...
Cystic Fibrosis and the NDIS
I am a person living with cystic fibrosis, can I apply for the NDIS? Yes. What does that mean for you? As a person living with cystic fibrosis, you are eligible for assessment to participate in the NDIS. You can apply for the NDIS here (hyperlink...
