Stories

Want to reach out? Our CEO, Petrina Fraccaro can be contacted on CEO@cfqld.org.au or (07) 3359 8000 and 0412 134 820. 

Meet the CAC – Ness

Meet the CAC – Ness

Vanessa (Ness) Tulenew - Community Advisory Committee Member I am married to my best friend and a mum to a beautiful boy - Ezra who is a cystic fibrosis warrior. I grew up in Canberra, spent a lot of time at the South Coast as a child and moved, with my family, to the...

Meet the CAC – Jess

Meet the CAC – Jess

Jessica Caesar - Community Advisory Committee Member, adult living with cystic fibrosis Hello everyone, my name is Jess, I’m 37years old and I’m a cystic fibrosis patient at The Prince Charles Hospital. I have two of my own businesses, including private house cleaning...

Meet the CAC – Ashton

Meet the CAC – Ashton

Ashton Greaves – Community Advisory Committee Member, adult living with cystic fibrosis. As a member of the Community Advisory Committee (CAC), I will work to amplify the voices of those affected by Cystic Fibrosis by participating in CAC forums and activities and...

Infection Control Reminder

Infection Control Reminder

Are you on a CFTR modulator? Don’t forget to maintain your infection control! CFTR modulator therapies have been a game changer for our community, and they are dramatically improving lives, but modulators are not a cure. The advent of cystic fibrosis transmembrane...

Meet Kim, our new Community Advisory Committee Coordinator!

Meet Kim, our new Community Advisory Committee Coordinator!

Welcome Kim! As the Community Advisory Committee Coordinator, Kim will work to be a voice for the cystic fibrosis community, advocating for ideas to improve charitable outputs, promote and raise awareness of cystic fibrosis, and strive for improved health outcomes to...

Meet Liz, our new Services Administrator

Meet Liz, our new Services Administrator

Welcome Liz! Liz first joined Cystic Fibrosis Queensland as part of her UQ internship program and upon having successfully graduated with a Bachelor of Health Sciences, she will be joining our team as the new Service Administrator. During her internship, Liz worked...

Meet Jen, our new Fundraising Coordinator

Meet Jen, our new Fundraising Coordinator

Welcome Jen! This year, Jennifer joined our team, and despite her relatively short tenure, her impact has been substantial. With a background as a successful hairdresser and business owner for many years, coupled with her role as a devoted mother, Jennifer seamlessly...

Top tips for staying cool in the sun this summer

Top tips for staying cool in the sun this summer

Summer in Queensland also means end of year parties, Christmas festivities and New Year celebrations. Let’s face it, to say that there is a lot going on is an understatement!  As a person living with cystic fibrosis, there is no reason that you can’t participate in...