Responding to Government

 

Cystic Fibrosis Queensland and Trusted Care Federal Budget Response 2022/2023

Cystic Fibrosis Queensland Advocacy Update 2022

Cystic Fibrosis Queensland State Budget Response 2022

Cystic Fibrosis Queensland 2022 Federal Election Response

​Cystic Fibrosis Queensland 2022 Federal Budget Response

Cystic Fibrosis Queensland State Budget Response 2021 – 2022

 

 

Letter of Support and Media

 

Letter from Dr Monique Ryan MP, Independent Federal Member for Kooyong, to the Federal Minister for Health and Aged Care, The Hon. Mark Bulter MP re Accelerating access to Trikafta for children with Cystic Fibrosis.

Media Release from The Hon. Michelle Landry MP, Federal Member for Capricornia. Re Trikafta Tied Up in Government Red Tape.

Letter from Rebekah Sharkie MP, Federal Member for Mayo, to the Federal Minister for Health and Aged Care, The Hon. Mark Butler MP re Pharmaceutical Benefits Scheme Lisiting of Trikafta for 6 – 11 year olds.

Letter from Nick Martin Chief of Staff for the Federal Minister for Health and Aged Care, to Hon Michelle Laundry MP, Federal Member for Capricornia, re Trikafta listing

Letter from the Federal Minister for Health and Aged Care,  to Stephen Bates MP, Federal Member for Brisbane for Ryan, re Trikafta listing

Media Release from The Hon. Michelle Landry MP, Federal member for Capricornia re Trikafta listing

Letter from Stephen Bates MP, Federal Member for Brisbane, to the Federal Minister for Health and Aged Care, The Hon. Mark Butler MP re Trikafta listing

Letter from the Federal Speaker The Hon. Milton Dick MP to Federal Minister for Health and Aged Care The Hon. Mark Butler MP re Continuous Glucose Monitoring, Health Care Card and the rising cost of energy for people living with cystic fibrosis

Letter from the Federal Minister for Health and Aged Care,  The Hon. Mark Butler MP, to Elizabeth Watson-Brown MP, Federal Member for Ryan, and Michael Berkman MP, State Member for Maiwar, re CF medication

Michael Berkman MP, State Member for Maiwar,  and Elizabeth Watson-Brown MP, Federal Member for Ryan,  joint letter to the Federal Minister for Health and Aged Care,  The Hon. Mark Butler MP re Trikafta

Miracle drug helps mum-to-be-go from possible lung transplant to pregnancy​

Trikafta to be available on the PBS 1 April 2022

Important message from ACFC regarding COVID-19  – 01 Jul 2021

Julian Simmonds MP, Federal Member for Ryan to Federal Minster for Health and Aged Care, The Hon Greg Hunt,, in support for Trikafta being listed on the PBS

Cystic Fibrosis Related Diabetes – Seeking letters of support for CFRD to be included in the NDSS