Support for members
Supporting our members during COVID-19
Cystic Fibrosis Queensland will continue to work alongside clinicians to support our members as the pandemic restrictions start to ease.
Visiting the Office
The office will re-open 01 June with a skeleton staff onsite Monday – Friday, 8.30am – 5pm. Visitors will still be restricted, and we request for people to please call ahead. If you do need to collect something from us or visit the office, please ring ahead on 07 3359 8000 to make an appointment.
Physical activities, parking and medical expense subsidies
We provide our members with a $150 subsidy per year for any expense which promotes physical activity, a maximum of $100 a year parking reimbursement and $100 subsidy for medical expenses.
Please send us a completed subsidy claim form along with any receipts to verify your claim. These subsidies may be claimed once every calendar year.
Click here to download the subsidy claim form.
Email the completed form to email@example.com by the first Wednesday in December.
Newly Diagnosed Support
Information is critical when your child is first diagnosed with cystic fibrosis and for the first 12 months of their life. Your hospital will provide you with a prepared Cystic Fibrosis Queensland information pack which also contains our membership form.
Click here to download your copy of the Newly Diagnosed Information for parents.
Boredom Buster Bags
Weekly Boredom Buster Bags are delivered to Queensland Children’s Hospital cystic fibrosis service. Email firstname.lastname@example.org to request a bag. Include your child’s age and gender. With notice, bags can be posted to other hospitals for children in rural, regional and remote areas.
We respond to referrals from schools requesting assistance with cystic fibrosis related issues. We use the CFSmart program to inform teachers who are preparing for the first time to have a child with cystic fibrosis in their class. If you would like us to visit your school please email email@example.com with your schools preferred dates and times and we will aim to accommodate your request.
Teachers are encouraged to complete the e-learning modules. Each module is worth one professional development point, is free to undertake and takes about 20-30 minutes to complete. The modules and more information on CFSmart can be found here
Cystic Fibrosis Queensland is able to provide individual level advocacy with external organisations when a client is not able to achieve their desired outcome.
Hospital airway clearance equipment
Cystic Fibrosis Queensland provides free respiratory equipment to people living with cystic fibrosis who are ineligible for MASS (medical aids subsidy scheme) through the cystic fibrosis hospital clinic physiotherapists. The items purchased by hospitals under this scheme have all been distributed by the physiotherapist to the cystic fibrosis community. Cystic Fibrosis Queensland has a number of airway clearance items in stock for members who are not covered by MASS, please speak to you hospital physiotherapist to obtain a referral for these items. Your physiotherapist will need to complete one of the following forms and forward it to firstname.lastname@example.org.
Links to forms:
If you have any questions, pleases don’t hesitate to contact 07 3359 8000 or email email@example.com.
Eight portable oxygen concentrators are available to loan our members who require this support. Please email firstname.lastname@example.org if you need to borrow an oxygen concentrator.
Cystic Fibrosis Queensland applies for a number of grants throughout the year, please contact email@example.com to find out if there are any grants currently available. All grants can be claimed by filling out the subsidy claim form and returning it to firstname.lastname@example.org.
Equipment is regularly funded by grants. Members are entitles to receive a nebuliser grant every three years. Before you register your interest with email@example.com, please speak with your clinician about product suitability.
Equipment is regularly funded by grants. Members are entitled to receive a spirometer grant every three years. Before you register your interest with firstname.lastname@example.org, please speak with your clinician about product suitability.
Exercise disguised as play! We regularly receive grants to provide our young members with a trampoline for physical exercise. Please email email@example.com if you would like to add your child’s name to the trampoline waitlist.
Accommodation assistance for rural and remote members
If you or a member of your family has cystic fibrosis and you live in a rural, regional or remote area and are eligible to claim government patient transport assistance – we can assist you with additional accommodation support of up to $25 per night up to a maximum of $100 per stay, capped at $400 per year.
Click here to download the form.
Email the completed form, along with evidence of your patient transport assistance scheme application, to firstname.lastname@example.org by the first Wednesday in December.
Please be sure to access your government patient transport assistance schemes first, such as the QLD Patient Travel Subsidy Scheme, the NT Patient Assistance Travel Scheme or the NSW Isolated Patients Transport and Accommodation Assistance Scheme
CF and COVID-19
Letter to the CF Community From the CF Centre Directors (CFA and Thoracic Society of Australia & NZ)
Maintaining Good Nutrition for individuals with CF During COVID-19 (Sydney Children’s Hospital)
Birdie and the Virus Children’s Health Queensland have developed an education tool to help parents talk about covid 19 with small children.
What is Corona Virus: A Kids Guide (Government of WA, Child and Adolescent Health Service)
My Name is Coronavirus (Mind Heart Kids)
Time to Come in Bear: A short video for little ones to help explain social distancing in an age appropriate way.
Hello Friends: A COVID-19 Special (Play School)
Mental Health and COVID-19 (Think Mental Health)
Thrive Inside with Smiling Mind (Smiling Mind)
https://mindspot.org.au/ latest mental health and well-being advice and tips
Beyond Blue, 1800 512 348
Lifeline, 0477 13 11 14 (text for a crisis supporter call back).
For all cystic fibrosis health concerns, please always speak first with your clinical team
Bodytrack Exercise Physiology
Bodytrack Exercise Physiology offer evidence based, individually designed exercise programs to help you manage your health conditions, find out more here.
Bodytrack are offering our members an Initial Assessment and an Individualised Home Exercise program, either in clinic or via telehealth, for just $150. You can also see your GP and get up to five, 30 minute rebated exercise physiology sessions under Medicare, give Bodytrack a call to find out more.
Experience the benefit of exercise as medicine, with this video, created especially for our cystic fibrosis members.
EPIC Assist has been helping people with disability and chronic illness find and maintain work for almost 30 years. The supportive team at EPIC Assist will work with you to find a part time or casual position that accommodates your physical and health needs.
When you start employment, they remain in touch and continue supporting you as you transition.
EPIC Assist not only helps you find employment, but also offers training to help job seekers re-skill for the workforce. EPIC Education Assist delivers nationally recognised courses for people with disability, individuals supporting people with disability, and those entering the disability sector. They also provide workshops to businesses interested in increasing their workplace diversity. EPIC Assist works closely with students to help them attain their qualifications, and go on to bigger and better things. High school students and adults who are completing traineeships, apprenticeships, and accredited courses can access extra study support through their partner organisation, Planning 4 Life.
If you need to change employment due to your health or are seeking to return to work, visit epicassist.org or phone 13 EPIC (13 3742) to speak with a consultant.
Better Care Market
Better Care Market are offering our members a 5% discount for their products.
To join up please click here.
TravelCard Real-Time Travel Insurance
TravelCard Real-Time Travel Insurance are offering Cystic Fibrosis Queensland members travel insurance with less paperwork and Real-Time claims. Find out more here.