Responding to Government

 

Cystic Fibrosis Queensland has added its voice to Rare Voices Australia’s Health Technology Assessment (HTA) letter to the Hon Mark Butler MP, Minister for Health, Disability and Ageing.

Media release -Families in Darling Downs left without answers on urgent cystic fibrosis care proposal

Speech from Minister Butler, National Press Club – 20 August 2025

Delivering quality care more efficiently – Interim report

Full recommendations of the Health Technology Assessment Policy and Methods Review

Cystic Fibrosis ACT State Budget response 2025 -2026 

Cystic Fibrosis Queensland State Budget Response 2025-2026

Cystic Fibrosis Queensland submission to the PBAC – RSV prevention

 Cystic Fibrosis Queensland Letter to the Health Minister

Cystic Fibrosis Queensland Letter to the Prime Minister

Cystic Fibrosis Queensland submission to the PBAC Alyftrek

Cystic Fibrosis Queensland: Strengthening NFP’s

Cystic Fibrosis Queensland Federal Budget Response 2025

Cystic Fibrosis Queensland State of the Nation 2025

Advocating for Equitable NDIS Access for People Living with Cystic Fibrosis

About Equitable Access to the National Diabetes Services Scheme for People Living with Cystic Fibrosis

Cystic Fibrosis Queensland Federal Election Priorities 2025

Cystic Fibrosis Queensland State Budget Response 2024/2025

Cystic Fibrosis Queensland Federal Budget Response 2024/2025

Cystic Fibrosis Queensland and Trusted Care State Budget Response 2023/2023

Cystic Fibrosis Queensland and Trusted Care Federal Budget Response 2023/2024

Cystic Fibrosis Queensland and Trusted Care Federal Budget Response 2022/2023

Cystic Fibrosis Queensland Advocacy Update 2022

Cystic Fibrosis Queensland State Budget Response 2022

Cystic Fibrosis Queensland 2022 Federal Election Response

​Cystic Fibrosis Queensland 2022 Federal Budget Response

Cystic Fibrosis Queensland State Budget Response 2021 – 2022

Cystic Fibrosis Queensland – Use of Genetic Testing in Life Insurance Submission 2024

Cystic Fibrosis Queensland – The Select Committee on Cost of Living Submission 2024

Cystic Fibrosis Queensland – Health Technology Assessment (HTA) Reform Submission 2024

 

Letter of Support and Media

$13.6 Million Boost to Strengthen Australia’s Clinical Trials and Accelerate Access to New Treatments

 Report No. 4, 58th Parliament – Inquiry into volunteering

Australians with paediatric psoriasis, fibrodysplasia, asthma, cystic fibrosis and blood cancer now have access to new and expanded cheaper medicines under the Pharmaceutical Benefits Scheme (PBS) 

Letter to The Hon Mark Butler MP Minister for Health and Aged Care – Urgent regulation of NDIS audit fees 

Response from The Hon Mark Butler MP Minister for Health and Ageing Minister for Disability and the National Disability Insurance Scheme in relation to Petition EN7148 that requests changes to the eligibility criteria for the National Diabetes Services Scheme (NDSS) to provide expanded access to subsidised diabetes products for Australians with cystic fibrosis related diabetes.

Response letter from Amanda Daniel, acting on behalf of the Minister for Health and Ageing and the Minister for Disability and the National Disability Insurance Scheme, the Hon Mark Butler MP

Response letter from Dr Leanne Laajoki from Hearing Services and Chronic Conditions Branch. Australian Government, Department of Health, Disability and Ageing. 

Response letter from the Hon. Amanda Rishworth MP, Minister for Social Services and the NDIS

Response letter from Dr. Anne Aly MP Minister Assisting the Minister for the NDIS

Letter of Congratulations to Dr. Anne Aly MP on her appointment as the Minster Assisting the NDIS Minister

Letter of Congratulations to The Hon. Amanda Rishworth MP on her appointment as Minister for the National Disability Insurance Scheme (NDIS)

Letter from David Crisafully MP, Premier and Minister for Veterans re. letter of congratulations

Media Release from The Hon Dr Andrew Leigh MP, Assistant Minister for Competition, Charities and Treasury, Assistant Minister for Employment re Supporting Philanthropic Giving

Media Release from The Hon Mark Butler MP, Minister for Health and Aged Care re HTA Policy and Methods Review update

Letter to Hon David Crisafulli MP. Congratulations on your appointment as Premier and Minister for Veterans, Queensland.

Letter to Hon Tim Nicholls MP Min Health and Ambulance Services

Letter to The Minster for Health and Aged Care – Health Technology Assessment (HTA) Implementation

Letter to The Hon, Bill Shorten MP, Minister for the National Disability Insurance Scheme (NDIS)

Letter to The Hon, Lia Finocchiaro MP, Chief Minister of the Northern Territory

Response Letter from Minister for Health and Aged Care – Health Technology Assessment (HTA) Policy and Methods Review (HTA Review)

New and amended Medicare Benefits Scheme 2024 – 2025 Budget

Strengthening Medicare 2024 – 2025 Budget

Letter from The State Minister for Health, Mental Health and Ambulance Services, Ministers for Women, Shannon Fentiman MP, 21 March 2024

Media Release from The Hon Mark Butler MP, Minister for Health and Aged Care re $148 million in new Medicare rebates for genetic testing

Letter from Assistant Minister for Mental Health and Assistant Minister for Rural and Regional Health, the Hon Emma McBride MP Response re NDSS, NDIS and HCC

Transcript from The Hon. Joe Kelly MP, Federal Member for Greenslopes. Re 65 Roses for Cystic Fibrosis National Day.

Media Release from The Hon. Michelle Landry MP, Federal Member for Capricornia. Re Children with CF to Receive Life-Changing Medication.

Letter from Dr Monique Ryan MP, Independent Federal Member for Kooyong, to the Federal Minister for Health and Aged Care, The Hon. Mark Bulter MP re Accelerating access to Trikafta for children with Cystic Fibrosis.

Media Release from The Hon. Michelle Landry MP, Federal Member for Capricornia. Re Trikafta Tied Up in Government Red Tape.

Letter from Rebekah Sharkie MP, Federal Member for Mayo, to the Federal Minister for Health and Aged Care, The Hon. Mark Butler MP re Pharmaceutical Benefits Scheme Lisiting of Trikafta for 6 – 11 year olds.

Letter from Nick Martin Chief of Staff for the Federal Minister for Health and Aged Care, to Hon Michelle Laundry MP, Federal Member for Capricornia, re Trikafta listing

Letter from the Federal Minister for Health and Aged Care,  to Stephen Bates MP, Federal Member for Brisbane for Ryan, re Trikafta listing

Media Release from The Hon. Michelle Landry MP, Federal member for Capricornia re Trikafta listing

Letter from Stephen Bates MP, Federal Member for Brisbane, to the Federal Minister for Health and Aged Care, The Hon. Mark Butler MP re Trikafta listing

Letter from the Federal Speaker The Hon. Milton Dick MP to Federal Minister for Health and Aged Care The Hon. Mark Butler MP re Continuous Glucose Monitoring, Health Care Card and the rising cost of energy for people living with cystic fibrosis

Letter from the Federal Minister for Health and Aged Care,  The Hon. Mark Butler MP, to Elizabeth Watson-Brown MP, Federal Member for Ryan, and Michael Berkman MP, State Member for Maiwar, re CF medication

Michael Berkman MP, State Member for Maiwar,  and Elizabeth Watson-Brown MP, Federal Member for Ryan,  joint letter to the Federal Minister for Health and Aged Care,  The Hon. Mark Butler MP re Trikafta

Miracle drug helps mum-to-be-go from possible lung transplant to pregnancy​

Trikafta to be available on the PBS 1 April 2022

Important message from ACFC regarding COVID-19  – 01 Jul 2021

Julian Simmonds MP, Federal Member for Ryan to Federal Minster for Health and Aged Care, The Hon Greg Hunt,, in support for Trikafta being listed on the PBS

Cystic Fibrosis Related Diabetes – Seeking letters of support for CFRD to be included in the NDSS

Enhance HTA: An Enhanced Consumer Engagement Process in Australian Health Technology Assessment – A Report of Recommendations