Emily’s Entourage – CF Clinical Trial Connect (CTC)
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators, including those with:
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- Ineligible genetic mutations
- Side effects from CFTR modulators
- Suboptimal response to CFTR modulators
Why register for CF CTC?
Gain early access to information about clinical trials
Join CF CTC for early access to the latest, relevant clinical trial opportunities – delivered straight to your inbox
Advance treatment for 100% of people with cystic fibrosis
Enrolling in a clinical trial helps speed drug development for those left behind by current CFTR modulators.
Be part of the solution
Clinical trial participation is critical to speed drug development for those that do not benefit from CFTR modulators. By joing CTC you are helping to create a future where no one is left behind.
Who can participate?
The CF Clinical Trial Connect database is open to people with CF from around the world who are unable to benefit from CFTR modulators, including those with:
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- Ineligible genetic mutations
- Side effects from CFTR modulators
- Suboptimal response to CFTR modulators
If you are under the age of 18, a parent or guardian can register on your behalf.
How does CF CTC work?
Joining CF Clinical Trial Connect only takes a few minutes. You will be asked for basic information, including your contact details, demographics, genetic mutation, and microbiology. You can register for yourself, or for an eligible loved one if you are the parent or guardian of a child under 18 years old.
Once you have joined, you will be added to our database. We will contact you about clinical trials that you might qualify for based on the information you provided. You can log in at any time to update your profile and to see current trials that Emily’s Entourage is supporting recruitment for.
CF Clinical Trial Connect also uses aggregated geographical data from registrants to help inform clinical trial site selection.
How are my data and privacy protected?
CF Clinical Trial Connect meets compliance requirements for the communities Emily’s Entourage serves, including General Data Protection Regulation (GDPR) requirements for the United Kingdom and the European Union.
Your data privacy and protection is important to us. Read the privacy policy for CF Clinical Trial Connect.