Resources

Queensland Children's Hospital - Parent Handouts

Resources created by the Occupational Therapy department at Queensland Children’s Hospital

CF Tips for Parents Handout - Daily routines and treatment

CF Tips for Parents Handout - Education

CF Tips for Parents Handout - Managing procedures and procedural anxiety

CF Tips for Parents Handout - Introducing new treatments and equipment

CF Tips for Parents Handout - Managing mealtimes

CF Tips for Parents Handout - Starting school or daycare

CF Tips for Parents Handout - Tablet Taking

My CF Jobs Timetable

Cystic Fibrosis Questions

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Other Resources

CF Smart

Urinary incontinence and cystic fibrosis

Modulator Treatments for Cystic Fibrosis: Effectiveness and Value

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Carers

If you are the parent or partner of a person living with cystic fibrosis and you support them with management of their chronic illness and clinical adherence, then you may be eligible for carers allowance.

There are also many online resources for you to access to support you in your role, a list of support services can be found here.

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If you would like to speak confidentially to another cystic fibrosis parent or partner to share your lived experiences, please contact services to help you connect with the right person.

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Useful Links

COVID-19 information

• https://www.qld.gov.au/health/conditions/health-alerts/coronavirus-covid-19

• https://headtohealth.gov.au/

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CF and COVID-19

• QCH – Supporting Kids & Families During COVID-19

• TPCH – COVID Update

• Adult CF Centre patient update letter (TPCH)

• Letter to the CF Community From the CF Centre Directors  (CFA and Thoracic Society of Australia & NZ)

• Maintaining Good Nutrition for individuals with CF During COVID-19 (Sydney Children’s Hospital)

Children

• Birdie and the Virus Children’s Health Queensland have developed an education tool to help parents talk about covid 19 with small children.

• What is Coronavirus short film (PCH)

• What is Corona Virus: A Kids Guide (Government of WA, Child and Adolescent Health Service)

• My Name is Coronavirus (Mind Heart Kids)

• Time to Come in Bear: A short video for little ones to help explain social distancing in an age appropriate way.

• Hello Friends: A COVID-19 Special (Play School)

• Hand Washing and Germs short films (CFWA)

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Mental Health

• Mental Health and COVID-19 (Think Mental Health)

• Thrive Inside with Smiling Mind (Smiling Mind)

• https://mindspot.org.au/  latest mental health and well-being advice and tips

• Beyond Blue, 1800 512 348

• Lifeline, 0477 13 11 14 (text for a crisis supporter call back).

For all cystic fibrosis health concerns, please always speak first with your clinical team

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