If you had told us January that we would be spending months isolating at home, practicing physical distancing from family and friends, and maintaining infection control – we would not have believed you! For many people living with cystic fibrosis, this experience is their normal.
COVID-19 is tough on everyone, but unlike people living with cystic fibrosis, we know that one day this will all be over and for us, the rules will relax.
At Cystic Fibrosis Queensland, our hope is that this pandemic, while challenging for us all to manage, will at least provide the broader public with a better understanding as to what it is like to live each day with a debilitating chronic illness.
People with cystic fibrosis are not encouraged to socialise with each other. The risk of cross- infection and exacerbation of lung conditions is too great. That means cystic fibrosis can be a lonely existence because people with cystic fibrosis cannot personally interact to share experiences and offer support.
Cystic Fibrosis Queensland is in a privileged position and has a special role working with and for the cystic fibrosis community. We see this pandemic as a unique opportunity to raise awareness about vulnerable people and we also hope that once the restrictions lift further, people are respectful of each other and continue to practice sanitation and hygiene. The actions of the wider population today can impact the health and wellness outcomes of our community tomorrow.
Stay safe and WASH YOUR HANDS!