Nov 16, 2023 | Blog post
Summer in Queensland also means end of year parties, Christmas festivities and New Year celebrations. Let’s face it, to say that there is a lot going on is an understatement! As a person living with cystic fibrosis, there is no reason that you can’t participate in...
Nov 7, 2023 | Blog post
Oct 4, 2023 | Blog post
The Final report makes 222 recommendations about what changes are needed to ensure we live in a more inclusive and just society that supports the independence of people with disability and their right to live free from violence, abuse, neglect, and exploitation....
Feb 3, 2023 | Blog post
Hello everyone, my name is Jess, and I am a 36-year-old living with cystic fibrosis. I’m actually writing this from my 34th country, Cambodia, and wanted to tell you all a little bit about myself and my travels with cystic fibrosis. Firstly, I consider myself very...
Feb 3, 2023 | Blog post
I’ll never forget the day I started Trikafta, it was 2020 and it was deemed I was unwell enough to apply for compassionate access to Trikafta, the new triple therapy modulator. I was unlucky to be that unwell but lucky to be granted access to Trikafta because it...
Jan 16, 2023 | Blog post
During the pandemic, Government Medicare subsidised psychology sessions were increased to 20. And from 1 January this year, they have been cut back to ten. We know that for many people, 20 sessions were far less than needed. The number is in fact arbitrary and may not...
