Meet the CAC – Ness

Meet the CAC – Ness

Vanessa (Ness) Tulenew – Community Advisory Committee Member I am married to my best friend and a mum to a beautiful boy – Ezra who is a cystic fibrosis warrior. I grew up in Canberra, spent a lot of time at the South Coast as a child and moved, with my...
Meet the CAC – Jess

Meet the CAC – Jess

Jessica Caesar – Community Advisory Committee Member, adult living with cystic fibrosis Hello everyone, my name is Jess, I’m 37years old and I’m a cystic fibrosis patient at The Prince Charles Hospital. I have two of my own businesses, including private house...
Meet the CAC – Ashton

Meet the CAC – Ashton

Ashton Greaves – Community Advisory Committee Member, adult living with cystic fibrosis. As a member of the Community Advisory Committee (CAC), I will work to amplify the voices of those affected by Cystic Fibrosis by participating in CAC forums and activities and...
Infection Control Reminder

Infection Control Reminder

Are you on a CFTR modulator? Don’t forget to maintain your infection control! CFTR modulator therapies have been a game changer for our community, and they are dramatically improving lives, but modulators are not a cure. The advent of cystic fibrosis transmembrane...