Hello everyone, my name is Jess, and I am a 36-year-old living with cystic fibrosis. I’m actually writing this from my 34th country, Cambodia, and wanted to tell you all a little bit about myself and my travels with cystic fibrosis. Firstly, I consider myself very...
I’ll never forget the day I started Trikafta, it was 2020 and it was deemed I was unwell enough to apply for compassionate access to Trikafta, the new triple therapy modulator. I was unlucky to be that unwell but lucky to be granted access to Trikafta because it...
During the pandemic, Government Medicare subsidised psychology sessions were increased to 20. And from 1 January this year, they have been cut back to ten. We know that for many people, 20 sessions were far less than needed. The number is in fact arbitrary and may not...
Cystic Fibrosis Queensland encourages all members to be cystic fibrosis advocates, and our team is available to help you to develop the skills and agency to add your voice to supporting our cause. Health consumers, people like you, have been involved in planning and...
Trusted Care Cares for our Carers – Proudly supporting the parents, partners and friends of people living with cystic fibrosis. This is an open psychosocial mental health information and awareness event targeting people who are personal carers for those living...
Cystic fibrosis affects the airways, lungs, endocrine system by causing an abnormal build-up of thick and sticky mucus. Treatment requires intensive daily physiotherapy to clear the lungs and airways, countless medications, and frequent hospitalisations. In Australia...
